On the 24th May myself and my cousin are running a half marathon to raise money for the Myaware charity 💜🌷

Myaware raise awareness and money to put into research, of the rare condition called Myasthenia, that many are not familiar with 💜

Myasthenia can affect people in different ways as there are different types of the condition. The strain of Myasthenia that I personally am raising awareness of is DOK7 congenital myasthenic syndrome (DOK7-CMS). This is a rare, inherited neuromuscular disorder caused by mutations in the DOK7 gene. It typically shows in early childhood with limb-girdle weakness, ptosis, and respiratory issues. While DOK7-CMS is a chronic condition, many people show dramatic, long-term improvement with proper treatment, leading to a much better quality of life 💜

Without charities like Myaware, people would not have the opportunity to learn and educate themselves 💜

Any support towards spreading awareness will be very much appreciated 💜

💜Thank you💜 Tierney Ball