Self-Advocacy Story: Shahina Khan They need to be educated! My journey to getting correctly diagnosed started in June 2024 when I had to see a Neurologist privately to get a diagnosis. Although that Neurologist did say that I could just be depressed! That was until they did a blood test which came back positive for Myasthenia Gravis. At that point the Consultant requested that my GP refer me to Neurology on the NHS. Sadly, things started to take a turn for the worse. I was admitted into two different hospitals on two separate occasions, for 5 days each time. Many there refused to listen to me when I said I needed to see my Neurologist, but I knew I needed to see him, so I had to persist. My eyes had become blurry, I had double vision and was unable to look up. My dizziness was back, and I was unable to chew and swallow food. I was struggling to take my medication with water – it was coming out of my nose! I have been on steroids and Pyridostigmine, and the miracle for me that is Azathioprine. While I have struggled with their side effects, I feel 50% better now! My frustration & misery of being ignored could have been avoided if the health professionals treating me were aware of Myasthenia. They need to be educated about the condition, and by advocating for myself, I hope to have done what I can to help with that education. Shahina Khan Manage Cookie Preferences