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  • Awareness
  1. Home
  2. Awareness

Awareness

Meningitis B outbreak: what you need to know

Meningitis B outbreak: what you need to know

Read more about the current meningitis B outbreak and guidance for myasthenia patients. Read more

Published: 19th March, 2026

Author: Charlotte Carpenter

Statement of Support: EuMGA

Statement of Support: EuMGA

The European Myasthenia Gravis Association (EuMGA) has written in support of myaware and our efforts in bringing access to innovative care for patients in the UK. Read more

Published: 10th June, 2025

Author: Charlotte Carpenter

MAM

MAM

This My Awareness Month, we’re focusing on Self-Advocacy. Read more

Published: 6th June, 2025

Updated: 11th July, 2025

Author: Chris Millard

Flu Vaccine 2025

Flu Vaccine 2025

Read more about the national flu immunisation programme 2025 to 2026. Read more

Published: 15th April, 2025

Author: Nicholas Pryce

The National MG Transformation Network

The National MG Transformation Network

One of the proposals to come from this report...Read more about what this and how you can get involved. Read more

Published: 2nd August, 2024

Author: Chris Millard

The European Myasthenia Gravis Association

The European Myasthenia Gravis Association

The EUMGA has relocated to Belgium .... read more here Read more

Published: 19th April, 2024

Author: Chris Millard

Rare Disease Connect in Neurology Meeting: Berlin 2023

Rare Disease Connect in Neurology Meeting: Berlin 2023

Our Research and Partnerships Officer attended the RDCN meeting in Berlin between November 29th and December 1st 2023. Read more... Read more

Published: 19th January, 2024

Updated: 13th May, 2024

Author: Nicholas Pryce

National Voices Membership

National Voices Membership

Representing our members via the coalition of health and social care charities in England Read more

Published: 29th September, 2023

Updated: 2nd October, 2023

Author: Chris Millard

What is the Sunflower?

What is the Sunflower?

Sunflower cards and lanyards for people with myasthenia. Read more

Published: 10th August, 2022

Updated: 5th July, 2023

Author: Chris Millard

News updates

News updates

Latest news and archive news stories from myaware Read more

Published: 7th September, 2020

Author: Chris Millard

Mynews

Mynews

Here you'll find the latest version of the myaware newsletter. Read more

Published: 20th March, 2019

Updated: 13th April, 2026

Author: Chris Albas-Martin

Awareness

Awareness

Help us raise awareness..."speak out and spread the word"! Read more

Published: 19th May, 2016

Updated: 19th April, 2024

Author: Chris Millard

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Latest

  • MAM 2026 'Managing Our Mental Health' online session with Doon Jackson

    MAM 2026 'Managing Our Mental Health' online session with Doon Jackson

    Join us for the last of our 2026 MAM online sessions ‘Managing our Mental Health’ with Doon Jackson. We are so pleased to offer you the chance to meet Doon, a trained counsellor with 20+ years' experience working in the charity sector.

  • MAM Financial Wellbeing top tips

    MAM Financial Wellbeing top tips

    Our My Awareness Month (MAM) theme this year is ‘wellness’, and our Welfare Rights Team is offering a Zoom session on financial wellbeing. Join us for an interview with Charlie and Caroline, our Welfare Rights Advisers, about their top tips for financial wellbeing, and a chance to ask questions about all things welfare benefits and welfare rights.

  • July 2026 New Members Welcome and Introduction Zoom Session

    July 2026 New Members Welcome and Introduction Zoom Session

    If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session’ where we will offer you practical and helpful support, and a chance to meet some of the team and others in similar situations.

  • Meg & Ethan raise money for Myaware

    Meg & Ethan raise money for Myaware

    Ethan got diagnosed with Myasthenia Gravis at just 9 years old.

Most read

  • Drugs to Avoid

    Drugs to Avoid

    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

  • The Extraocular Muscles

    The Extraocular Muscles

    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • What is myasthenia?

    What is myasthenia?

    The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.

  • Intravenous Immunoglobulin

    Intravenous Immunoglobulin

    IVIg is given intravenously into a vein via an infusion pump.

  • Myasthenia Gravis

    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

  • Driving

    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

  • Steroid Information Sheet

    Steroid Information Sheet

    Steroids are a type of medication called an immunosuppressant.

  • Thymectomy Information

    Thymectomy Information

    Find out how a thymectomy can help people with myasthenia gravis.

  • Top Tips

    Top Tips

    Read our top tips on how to live with myasthenia including information you may find useful.

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Myaware is a Registered Charity No. England & Wales 1046443. Scotland SC044744. Company Limited by Guarantee No. 3038358 (England)

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