Self-Advocacy in Focus - My Awareness Month 2025 Webinar

This webinar focuses on self-advocacy, giving you the confidence and tools to take an active role in your health and wellbeing. Speakers Professor Saiju Jacob, Specialist Nurse Shelly Rodriguez and myaware National Support Coordinator, Tracey Maitland talk about self-advocacy in practice and offer lived experience of myasthenia. 

Lifestyle and exercise 

Dr Channa Hewamadduma helps us start My Awareness Month by hosting a webinar on the importance of lifestyle and exercise for those with Generalised Myasthenia Gravis.

Dr Hewamadduma has been treating myasthenia patients for 20 years and explains the different types of fatigue, how to exercise safely, and discusses longer term fatigue management.

Myasthenia Specialist Nurses ‘Frequently Asked Questions’ Webinar

Myaware is proud to present the Specialist Nurses Frequently Asked Questions Webinar for My Awareness Month. 

This is a FAQ’s session with three of the UKs Myasthenia Specialist Nurses. The Nurses answer some of the most commonly asked questions by their patients.  

Advances in Research by Dr Katherine Dodd

Awareness Month

Lung and Bone Health in Myasthenia 

Our Research and Partnerships manager Charlotte Campbell, goes through all the current discoveries regarding lung and bone health in myasthenia. 

Lung function Q&A

Lung function reference list

Diagnosis and Management of Juvenile Myasthenia Gravis (JMG) in children

National Support Coordinator Sarah speaks with consultant paediatrician Dr Pinki Munot from Great Ormond Street hospital about the diagnosis and management of juvenile myasthenia gravis in children.

Kids with JMG - exercise, education and wellbeing

Myaware's National Support Coordinator Sarah speaks with Neuromuscular Physiotherapist Hayley Ramjattan about the importance of exercise and education for improving the wellbeing of kids with juvenile myasthenia gravis (JMG).