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  1. Home
  2. Self Advocacy Stories

Self Advocacy Stories

Welcome to our Member Self Advocacy Stories page, a space dedicated to the powerful voices of our members who have taken action, spoken up, and made a difference in their own lives and communities.

These stories highlight the strength, resilience, and determination of individuals who have embraced self-advocacy to overcome challenges, assert their rights, and inspire others along the way.

Whether navigating healthcare, welfare, or everyday life, our members show that advocacy isn't just about speaking out, it's about being heard.

We invite you to explore these personal journeys, celebrate their successes, and gain inspiration to take charge of your own path.

Self-Advocacy Story: Tania Brooks

Self-Advocacy Story: Tania Brooks

All I ask is that they listen! Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Shahina Khan

Self-Advocacy Story: Shahina Khan

They need to be educated! Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Richard Nunn

Self-Advocacy Story: Richard Nunn

Who knows where I’d be? Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Kirstyn Flemming

Self-Advocacy Story: Kirstyn Flemming

It is vital that you advocate for yourself, all of the time! Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Kim Spicer

Self-Advocacy Story: Kim Spicer

Self advocacy - a work in progress Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy story: Huw Simmonds

Self-Advocacy story: Huw Simmonds

I would urge anyone else to seek advice on how to best self-advocate when applying for benefits, it really does help! Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy story: Frances Ford

Self-Advocacy story: Frances Ford

In May 2021 I received a diagnosis of Generalised Myasthenia Gravis. Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Reasonable adjustments have really helped me at work!

I work for a transport company as a manager. I had been with the firm for years when I started developing symptoms of myasthenia. Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

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Latest

  • MAM 2026 'Managing Our Mental Health' online session with Doon Jackson

    MAM 2026 'Managing Our Mental Health' online session with Doon Jackson

    Join us for the last of our 2026 MAM online sessions ‘Managing our Mental Health’ with Doon Jackson. We are so pleased to offer you the chance to meet Doon, a trained counsellor with 20+ years' experience working in the charity sector.

  • MAM Financial Wellbeing top tips

    MAM Financial Wellbeing top tips

    Our My Awareness Month (MAM) theme this year is ‘wellness’, and our Welfare Rights Team is offering a Zoom session on financial wellbeing. Join us for an interview with Charlie and Caroline, our Welfare Rights Advisers, about their top tips for financial wellbeing, and a chance to ask questions about all things welfare benefits and welfare rights.

  • July 2026 New Members Welcome and Introduction Zoom Session

    July 2026 New Members Welcome and Introduction Zoom Session

    If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session’ where we will offer you practical and helpful support, and a chance to meet some of the team and others in similar situations.

  • Meg & Ethan raise money for Myaware

    Meg & Ethan raise money for Myaware

    Ethan got diagnosed with Myasthenia Gravis at just 9 years old.

Most read

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    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

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    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • What is myasthenia?

    What is myasthenia?

    The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.

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    IVIg is given intravenously into a vein via an infusion pump.

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    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

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    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

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    Steroids are a type of medication called an immunosuppressant.

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    Thymectomy Information

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  • Top Tips

    Top Tips

    Read our top tips on how to live with myasthenia including information you may find useful.

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Myaware is a Registered Charity No. England & Wales 1046443. Scotland SC044744. Company Limited by Guarantee No. 3038358 (England)

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